Providing Holistic Care for Alzheimer’s Patients: Patrick and Clare’s Story

Caring for a loved one with Alzheimer’s Disease is a challenging and emotionally taxing journey. In this blog post, we delve into the life of Patrick, a dedicated caregiver to his wife Clare, who battles stage 4 Advanced Alzheimer’s Disease. Patrick’s commitment to providing unwavering care for Clare highlights the struggles and triumphs that come with being a full-time carer. However, with the support of an organisation like Support Genie, their story takes a turn towards betterment and hope.

The Role of a Dedicated Caregiver

Patrick’s life took a significant turn when he became the primary caregiver for his beloved wife, Clare. With her diagnosis of stage 4 Advanced Alzheimer’s Disease, Patrick’s role extended far beyond being a spouse; he became Clare’s constant support, providing both physical and emotional care. But as any caregiver knows, this role can take a toll on one’s own physical and mental well-being.

A Life Put on Hold

Caring for Clare daily meant that Patrick had to make significant sacrifices in his own life. Simple pleasures like overseas travel, fishing trips, and visiting his extended family in Malaysia, which were once sources of enjoyment, became nearly impossible due to Clare’s needs. The weight of responsibility often left Patrick feeling isolated and restricted from the activities that brought richness to his life.

A Glimmer of Hope from Support Genie

In the midst of these challenges, Support Genie emerged as a beacon of hope for Patrick and Clare. Recognising the toll Alzheimer’s was taking on Patrick and understanding the importance of maintaining his own well-being, Support Genie advocated for a reassessment of Clare’s NDIS plan. The goal was to secure approval for 24/7 respite 2:1 support, allowing Patrick to have a well-deserved break for 4 weeks a year.

Comprehensive Care Tailored to Clare’s Needs

Alzheimer’s Disease brings with it a myriad of challenges that both the patient and the caregiver must navigate. Clare’s daily life was affected by visual hallucinations, sensitivity to noise, discomfort in crowded environments, mobility issues, incontinence, and swallowing difficulties. In light of these challenges, Support Genie’s dedicated team stepped in to provide holistic care that catered to Clare’s specific needs.

A Familiar and Supportive Environment

Recognising the importance of familiarity and routine for Alzheimer’s patients, Support Genie ensured that Clare received care from the same compassionate staff members who understood her daily routine and needs. From hoist transfers and medication management to mealtime support and emotional care, Clare’s needs were met with the utmost attention to detail. The caregivers also extended their assistance to grocery shopping, meal preparation, laundry, plant care, and domestic cleaning.

Meal preparation for Clare

Enriching Spiritual Well-being

Support Genie went above and beyond by acknowledging the significance of spiritual well-being in Clare’s life. Despite her condition, Clare continued to participate in weekly church services, providing her with a sense of routine and connection to her faith. This not only contributed to her mental and emotional well-being but also highlighted Support Genie’s commitment to personalised care that embraces every aspect of a patient’s life.

Clare attending her weekly Church service

Conclusion

Patrick and Clare’s journey through Alzheimer’s Disease sheds light on the challenges faced by caregivers and patients alike. It underscores the importance of tailored, holistic care that not only addresses medical needs but also considers the individual’s emotional, social, and spiritual well-being. Support Genie’s involvement in their story showcases the positive impact that organisations focused on comprehensive care can have in enhancing the quality of life for both patients and caregivers.

Our team hails from various backgrounds, encompassing different ethnicities, languages, and traditions. This diversity enriches our approach to patient care, allowing us to provide culturally sensitive and individualised support.

Support Genie wishes to acknowledge the traditional custodians of the land on which our services are delivered – the people of the Noongar Nation. We acknowledge and pay respect to the Noongar people’s ongoing culture, beliefs and relationship with the land, as well as their rich contribution to life in this region.

© 2024 HY & OB Pty Ltd trading as Support Genie. All rights reserved.